But all this is like a re-run for me. The last couple years of mother's life was filled with dementia & sundowner's. She was fine for one minute then some place else the next. It wasn't until after about 4-5 years that she exhibited signs of sundowners at home.
One evening we were coming home from a friend's house. Mom had lived in Albuquerque most of her life. She and Dad moved back here in 1946 and never left, living in the same home since 1947. The route I was taking was one she and I had used for MANY years. I was driving west and she insisted we were going north and would end up in Santa Fe. I promised her we would be home within 10 minutes and I was going west. She said she doubted it but as long as I knew that when we stopped she was going to say "I told you so." Ten minutes later, when I pulled up to the gate and got out and opened it, she still insisted we were some other place. I got her into the house, into her room and all was well. No, I didn't say "told you so." She was fine, knew where she was and insisted I had turned around "some place". I knew when to keep quiet.
I see things like this with Lyn. Perhaps it is Atypical. I have said for 40 years that she is herself. She has challenges but was never put in a cubbyhole. Just because "most" people do something one way doesn't mean they all will. Just because her sundowner's hasn't kicked in at home doesn't mean it won't. I believe it will - one day.
I am frustrated with the medical establishment, with a case manager who now seems to be back-peddling on all this. I'm frustrated! Maybe it's just that she "didn't read that chapter in the medical books" as a pediatrician once told me. She's just Lyn.